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Strategies for Nurse Advocacy

This table lists some potential problems associated with advance directives and highlights possible advocacy actions for the nurse.

Table 2: Advance Directives

POTENTIAL PROBLEM
POSSIBLE NURSE ACTION
Patients can't necessarily predict their future preferences and they know too little about what "life support" means
  • Patient education
  • Provide information that advance directives can be changed at any time up to incapacity
Patients may change their minds
  • Patient education
  • Provide information that advance directives can be changed at any time up to incapacity
The health care proxy may turn out to be a poor choice and make decisions that are obviously not in line with patient's earlier stated preferences Proactive discussion with patients about who would make a good proxy - not necessarily the person closest to the patient
Treatment directives are too vague and open to divergent interpretation Inform patient that one can't plan for every eventuality therefore assistance in choosing an appropriate proxy is helpful
Even the most diligent proxy cannot necessarily tell what the patient would have wanted in certain circumstances especially in the absence of a written directive Other standards such as that of the "reasonable person" can be helpful
The proxy may make a treatment choice contrary to the patient's written directive Ethics consult/committee involvement
The proxy may make a decision with which the institution or physician disagrees Ethics consult/committee involvement
The proxy decision-maker may find the burden of decision making too overwhelming Assistance from health care team/ethics resource

Resources:

Hiltunen, E. F., Medich, C., Chase, C., Peterson, L., & Forrow, L. (1999) Family decision making for end-of life-treatment:The SUPPORT nurse narratives. The Journal of Clinical Ethics, 10(2), 126-134.
Marshall, P. A. (1995). The SUPPORT study: Who's talking? Hastings Center Report, 25(6), S9-S11.
Wolf, S. M. (2001/1991). Sources of concern about the Patient Self-Determination Act. In W. Teays, & L. Purdy (Eds.), Bioethics, justice and health care, (pp.411-419). Belmont, CA: Wadsworth. Reprinted from New England Journal of Medicine, 325(23),1991, 1666-1671.